This article is aims to investigate about little known quality of life (QoL) of disabled children. It describes self-reported QoL of children with cerebral palsy, factors that influence it, and how it compares with QoL of the general population.
In this research, 743 children aged 8–12 years were randomly selected from eight population-based registers of children with cerebral palsy in six European countries; one further region recruited 75 children from multiple sources. Researchers visited these 818 children. 318 (39%) with severe intellectual impairment could not self-report; 500 (61%) reported their QoL using KIDSCREEN, an instrument with scores in ten domains, each with SD=10. Comparisons were made with QoL data from the general population.
Based on the research findings, it is possible to say that impairments were not significantly associated with six KIDSCREEN domains. Comparison of least and most able groups showed that severely limited self-mobility was significantly associated with reduced mean score for physical wellbeing; intellectual impairment with reduced mean for moods and emotions and autonomy; and speech difficulties with reduced mean for relationships with parents. Pain was common and associated with lower QoL on all domains. Impairments and pain explained up to 3% and 7%, respectively, of variation in QoL. Children with cerebral palsy had similar QoL to children in the general population in all domains except schooling, in which evidence was equivocal, and physical wellbeing, in which comparison was not possible.
Under the light of the research findings, researchers advising that parents can be reassured that most children aged 8–12 years with cerebral palsy will have similar QoL to other children. This finding should guide social and educational policy to ensure that disabled children participate fully in society. Because of its association with QoL, children’s pain should be carefully assessed.